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The parents of a two-year-old girl with a life-limiting illness have told of their "exhaustion" after being refused a request for respite help.

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ME – also known as Chronic Fatigue Syndrome – has long been one of medicine’s most perplexing conditions. With no definitive diagnostic test and a legacy of scepticism in parts of the medical community, patients have often struggled to be believed. But a surge of new research may finally be shifting the landscape.

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